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Things I Wish I'd Known: Cancer Caregivers Speak Out - Third Edition, by Deborah J. Cornwall
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Updated 2016; Family caregivers are the unsung heroes of the life-saving drama that's triggered by a cancer diagnosis. Nearly three quarters of American households will find themselves caring for a cancer patient at one point in their lives. This book is the first to capture their thoughts, feelings, and insights on a large scale. It is based on 101 formal interviews with non-professional caregivers (some of whom are cancer survivors themselves), covering 122 patients in 19 states and Canada who ranged in age from 2 to 92 and faced 40 different cancer diagnoses. Practical lessons drawn from caregivers' experiences are intermingled with their own words to forge a compelling narrative intended to help both patients and their family caregivers to understand and cope with the full range of issues they should anticipate as they fight the battle of their lives.
The lessons provide building blocks on which you can rely as you participate in decision-making and plan for the future. You will learn about cancer caregiver considerations in:
Getting a clear cancer diagnosis
Gathering information about the cancer diagnosis
Choosing cancer treatment partners
Making cancer treatment decisions (including complementary and
alternative treatments and palliative care)
Getting inside the cancer caregiving role (including questions to ask on doctor visits)
Accessing available cancer information and treatment resources (including clinical trials)
Managing cancer-related financial and legal issues
Seeking normalcy during cancer treatment
Confronting cancer-related issues facing families with children
(children in a household with cancer, and children as patients)
Managing cancer caregiver emotions and health
Nearing life's end from cancer
Preparing for the aftermath (including how cancer caregivers heal)
Anticipating how cancer changes caregivers
- Sales Rank: #555190 in Books
- Published on: 2016-01-15
- Original language: English
- Number of items: 1
- Dimensions: 9.02" h x .60" w x 5.98" l, .87 pounds
- Binding: Paperback
- 266 pages
Review
Although Cornwall speaks directly to caregivers, this book may also be useful to cancer educators and counselors working with families experiencing cancer of any variety or severity. Cornwall never shies away from the most difficult aspects of her topic. . . . the underlying message of this book remains positive. -ForeWord Reviews (Starred Review)
This book was awarded the 2012 Gold Medal of the Florida Publishers' Association in the self-help category. -Florida Publishers Association
. . . a compilation of hundreds of stories about loved ones who've cared for those with cancer and what can be shared to help relieve the burden for those who are struggling with their loved ones when faced with their own life's problems. [This] is a strong and much recommended pick for any collection catering to caregivers. -Midwest Book Review
Cornwall has a wealth of knowledge about cancer patients, survivors, and caregivers. The stress of caregiving is the main topic of this comprehensive book, and she discusses how to advocate for one's patient, help children with cancer, understand "pull-aways" among family and friends, and manage expectations for medical professionals. She includes helpful chapters on seeking normalcy and enjoying time together before a loved one's death. A much-needed support tool for an ever-growing portion of the population. -Library Journal
. . . Things I Wish I'd Known: Cancer Caregivers Speak Out is part manual and part oral history, a combination that suits this subject well. Cornwall has a firm grasp on the various balancing acts a caregiver must perform on a daily basis. . . . The book is organized into self-contained chapters that can be read entirely out of sequence, a smart move for a text whose intended readership may never be sure exactly how much reading time they have at any particular moment. . . .- Touched by Cancer Magazine, Phill Powell, Nov.-Dec. 2012
Tiffany's husband defines "caregiver" in his story about supporting her through her diagnosis with colorectal cancer. He says, "My role was to slow her down and be the voice of patience and calm. I had to say to her, 'You are unique. You're not a statistic.'"
It's anecdotes such as the one above that make me wish I knew Deborah J. Cornwall's "Things I Wish I'd Known: Cancer Caregivers Speak Out" existed when my mom was diagnosed with and treated for breast cancer. . . . The relatable thoughts and experiences that fill the pages of Ms. Cornwall's book make this book a must-read for people who find themselves caregivers as soon as their loved ones utter the words "I have cancer."
. . . Woven together, these stories provide the reader with an invaluable resource. As Ms. Cornwall says, "There's no better way to learn about dealing with cancer as a caregiver than hearing other people's stories." -Josh Fernandez, Writer and Web Content Coordinator, Living Beyond Breast Cancer Blog (LBCC.org), October 30, 2013
From the Author
Deborah J. Cornwall is the author of Things I Wish I'd Known: Cancer and Kids (2015) and Things I Wish I'd Known: Cancer Caregivers Speak Out (2012-3). A breast cancer survivor, she has been associated with the American Cancer Society (ACS) and its Cancer Action Network as a volunteer leader since 1994, serving in a variety of local, regional, and national roles and acting as a frequent media spokesperson. She is a member of stakeholder peer research committees to contribute to ACS research funding decisions for grants to early-career researchers at both New England and national levels. In 2013 she was awarded the American Cancer Society's St.George National Award for her contributions to cancer control, and in2014 she received the Lorin Lavidor Caregiver Award from the N.E.Coalition for Cancer Survivorship. Deborah's personal goal is to increase Federal funding for cancer research and to eliminate cancer as a health concern during our lifetimes.
Her passion to write the first book (Things I Wish I'd Known: Cancer Caregivers Speak Out) was ignited by her interaction with cancer patients and caregivers at the Society's AstraZeneca Hope Lodge Center in Boston where she came in contact with people whose survival and caregiving stories were much more dramatic than her own. Generous with their stories, the 101 interviewed caregivers (who came from 19states and represented 122 patients with over 40 different cancer diagnoses) felt a strong desire to be heard and to share the lessons they had learned (often the hard way).
Her second book, Things I Wish I'd Known: Cancer and Kids, draws on that foundation by offering guidance to adults on how to help them understand the impact of cancer on their families' lives and how to engage children with cancer in age-appropriate ways. It is distinctive in that it provides the reader with quick access to many available resources for depth on a variety of critical topics.
About the Author
Deborah J. Cornwall has been associated with the American Cancer Society and its Cancer Action Network as a volunteer leader since 1994, performing a variety of local, regional, and national roles and serving as a media spokesperson before audiences ranging from 16 to 30,000. Her passion to write this book was ignited by her interaction with cancer patients and caregivers at the Society's AstraZeneca Hope Lodge Center in Boston. In 2013, she was awarded the American Cancer Society's St. George National Award for her contributions to the fight against cancer. Professionally she consults with boards of directors and CEOs on leadership, CEO succession, governance, and change issues as Managing Director of The Corlund Group.
Most helpful customer reviews
6 of 6 people found the following review helpful.
Wonderful resource for anyone living the caregiver role
By Amazon Customer
Two years ago I spoke with Deborah when my husband was receiving radiation treatment for his rare form of cancer. I instantly felt that the book she was creating would be of huge value for caregivers facing major illness. As a young parent and caregiver for my husband, during our ordeal I often felt that my role was inconsequential to what he was battling. Yet "Things I Wish I'd Known" acknowledges all the uncertainty, worry and stress that caregivers face and guides them through the steps of the journey with words and encouragement from others who have lived the same experiences. This book gives the caregiver's role a voice, and sometimes that is all that is needed to get through the day when you are facing serious illness.
3 of 3 people found the following review helpful.
An oncologist's appreciation
By I. Cunningham, MD
Physicians who treat serious illnesses know they alone cannot provide all that a person needs to relieve the stresses, pain, and fears that are part of lengthy illness. A family member or friend eager to help care for someone is as valuable as the medical team and treatment. There is no instruction manual for the unknown and often frightening parts of the complex job that a caregiver assumes, and oncologists, in particular, wish that new caregivers had access to people who already discovered ways to help them through. Deborah Cornwall has provided the voices of people of different ages and backgrounds who learned to work through the unknowns and the stress points of lengthy illness and who want to help others navigate through them. Though illnesses vary, as do their prognoses, there are common stresses for all patients, and they and the people who care for them should feel less alone and more knowledgeable after hearing from the many people speaking in this useful new book.
I. Cunningham, MD, Hematologist/Oncologist
3 of 3 people found the following review helpful.
An Inside Look at the Cancer Caregiver Role
By Laura
Things I Wish I'd Known by Debbie Cornwall says it all. This unique collection of many voices and many lives affected by cancer brings to the forefront a true look into the role of the cancer caregiver. The many insights presented in this book illustrate the complexity of taking on a new role and relationship. Throughout this well organized compendium of personal experiences, parents, children, friends and many others describe giving up the normal/comfortable place in a relationship to become the "caregiver", while longing for that return to "normal". This book is at once thought-provoking and sad, yet it is filled with very helpful ideas that others may choose to incorporate should they become cancer caregivers.
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